In the spotlight
Discover here the book written by Finley Pletcher, a 5-year old girl with LCA who tells her moving story in "when the lights go out". She explains what it is like to lose your sight from the perspective of a small child, and hopes to raise awareness from other parents and children on how it is to live with a rare genetic disease and what you're missing out whenever your sight does get robbed from you.
Gifts can be presented to the Foundation or transferred to its account no. IBAN BE10 0000 0000 0404, BIC: BPOTBEB1 with the following reference: "S12760 Candle in the Dark - Child Vision Research Fund"
"What is Candle in the Dark?"
Candle in the Dark is a charitable organisation, managed by the King Baudouin Foundation, funding research into gene therapy for inherited eye diseases, which leads to blindness in young children. Its aim is to help develop effective treatments, ultimately providing a cure for blindness and visual impairment.
"Who does the fund help?"
Candle in the Dark aims to assist children who are affected by hereditary eye disorders such as Leber Congenital Amaurosis (LCA). Of the various forms of retinal degeneration, LCA has the earliest age of onset and is the most severe. As this disease is progressive, (it gets worse over time), it is critical to treat it as early as possible in order to have the best chances of recovery or stabilization. Hence the fund’s focus on children. Funding research offers the prospect of treatment to those with LCA.
"What does the fund do?"
The Child Vision Research Fund raises money to financially support scientific research throughout the world dedicated to develop new treatments for genetic retinal degenerative diseases. It is also committed to promote public awareness of these conditions.